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'Help my little Lily get a new chair'
EVERY time Lily Ilott goes to school, her parents pray her wheelchair will last another day.
The six-year-old has type two spinal muscular atrophy, a genetic condition which means she cannot bear weight and is confined to a wheelchair.
Her current wheelchair is worn out and too small, so Lily’s parents have launched a £17,000 appeal to buy her a new one.
Oxfordshire Primary Care Trust has confirmed it will contribute £2,500, but the family, from Worton Road, Middle Barton, near Bicester, will have to raise the rest.
People are being urged to go along to a casino night at the village social club in Worton Road tonight to help get the appeal off the ground.
Mum Jo Ilott, 40, said: “A new wheelchair will make a massive difference to Lily.
“If she doesn’t get a new chair the current one will start to break down.
“She will have to be pushed around and will lose her independence. Lily’s going to be in a wheelchair for the rest of her life and has to come to terms with that.
“She has been going through a tough time recently.
“She’s been having dreams that she can walk and sees her little sister finding her feet. That’s a lot to take on board when you are six years old.
“Lily has exercises every day at school and is the only one in her class in a wheelchair.
“She wants to be racing around like everyone else and doesn’t want to be pushed around in a manual wheelchair. That’s what will happen until we can raise the money to get a new one.”
A new chair would last Lily at least five years. It would have a specially-moulded seat, lights, be easy to turn and compact.
Her current wheelchair is from charity Whizzkidz, but there is an 18-month waiting list for a replacement.
Lily, a pupil at Middle Barton School, was diagnosed with her condition, which can be life limiting, at the age of 18 months.
To donate to the appeal, email email@example.com