Roll-out of NHS data sharing proposals blasted by GP

The Oxford Times: Gordon Gancz Gordon Gancz

AN OXFORD GP who said he will defy NHS plans to collect patient data has said the proposal’s six-month delay will not change public feeling.

Dr Gordon Gancz, King Edward Street Surgery GP, said a lack of communication had angered people about proposals to start a new NHS data-sharing scheme.

Records will be passed on to NHS England, unless patients opt out, but the information will now start being collected in the autumn – six months later than scheduled.

Dr Gancz said: “My view is that the whole system has been damaged by this lack of communication.

“There is a lot of anger out there. I have had lots of letters and emails about it.

“First of all, they need to see that all the patient identification has been removed before they leave the practices.

“Two, make it an opt-in system, not an opt out system, so we can explain the benefits of this but also the risks of this database.

“Thirdly, they need to send to everyone a proper letter explaining it.”

Tim Kelsey, national director for patients and information at NHS England, said: “NHS England exists for patients and we are determined to listen to what they tell us. We have been told very clearly that patients need more time to learn about the benefits of sharing information and their right to object to their information being shared.

“That is why we are extending the public awareness campaign by an extra six months.”

Comments (11)

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8:40am Fri 21 Feb 14

Andrew:Oxford says...

What about his patients who trust the NHS and would find comfort that anonymised details of their sickness and misery will help prevent others from suffering in the same way?
What about his patients who trust the NHS and would find comfort that anonymised details of their sickness and misery will help prevent others from suffering in the same way? Andrew:Oxford
  • Score: -2

8:51am Fri 21 Feb 14

yabbadabbadoo256 says...

sounds to me a lot like standard GP moaning
sounds to me a lot like standard GP moaning yabbadabbadoo256
  • Score: 0

9:22am Fri 21 Feb 14

Shaun the Faun says...

I wonder if some of this antipathy from some GPs might be because not only will this data be beneficial in improving the health of ALL patients but will also enable a far-more forensic assessment of how GPs are performing in terms of the medical-quality of the care they're providing.

And why this bogus fuss about the 'Private Sector'? ALL GP Practices are in the private sector! GPs are self-employed and don't receive their salary from the NHS .
I wonder if some of this antipathy from some GPs might be because not only will this data be beneficial in improving the health of ALL patients but will also enable a far-more forensic assessment of how GPs are performing in terms of the medical-quality of the care they're providing. And why this bogus fuss about the 'Private Sector'? ALL GP Practices are in the private sector! GPs are self-employed and don't receive their salary from the NHS . Shaun the Faun
  • Score: 2

9:58am Fri 21 Feb 14

Oxonian says...

What the three preceding comments ignore is that the information may well be sold to commercial firms, who may be able to identify individuals from it.

For example, if the information is sold to an insurance company and it can find out that you have had a particular illness, it may then refuse insurance cover to members of your family.

By the way, we were told that every household would receive a leaflet explaining the new system, but I haven't had one. Have you?
What the three preceding comments ignore is that the information may well be sold to commercial firms, who may be able to identify individuals from it. For example, if the information is sold to an insurance company and it can find out that you have had a particular illness, it may then refuse insurance cover to members of your family. By the way, we were told that every household would receive a leaflet explaining the new system, but I haven't had one. Have you? Oxonian
  • Score: 1

10:54am Fri 21 Feb 14

yabbadabbadoo256 says...

Oxonian wrote:
What the three preceding comments ignore is that the information may well be sold to commercial firms, who may be able to identify individuals from it.

For example, if the information is sold to an insurance company and it can find out that you have had a particular illness, it may then refuse insurance cover to members of your family.

By the way, we were told that every household would receive a leaflet explaining the new system, but I haven't had one. Have you?
I think you find that data has to be "anonymised" by law before it is sold as part of the Data Protection Act.

I agree this is more like GP Scaremongering as the data can be used to assess their care quality levels
[quote][p][bold]Oxonian[/bold] wrote: What the three preceding comments ignore is that the information may well be sold to commercial firms, who may be able to identify individuals from it. For example, if the information is sold to an insurance company and it can find out that you have had a particular illness, it may then refuse insurance cover to members of your family. By the way, we were told that every household would receive a leaflet explaining the new system, but I haven't had one. Have you?[/p][/quote]I think you find that data has to be "anonymised" by law before it is sold as part of the Data Protection Act. I agree this is more like GP Scaremongering as the data can be used to assess their care quality levels yabbadabbadoo256
  • Score: 0

12:01pm Fri 21 Feb 14

Shaun the Faun says...

Oxonian wrote:
What the three preceding comments ignore is that the information may well be sold to commercial firms, who may be able to identify individuals from it.

For example, if the information is sold to an insurance company and it can find out that you have had a particular illness, it may then refuse insurance cover to members of your family.

By the way, we were told that every household would receive a leaflet explaining the new system, but I haven't had one. Have you?
Two "may well's" there indicating the poster is surmising.

A decision on whether not the ANONYMISED data will be made available to commercial companies has not yet been reached; it's due in April.

This data has been collected by hospitals for very many years. Were we consulted then? No; because it's not personalised data Has been there been any issue with this data being 'leaked' or used for dubious purposes? No.

Some GPs still have the "Doctor knows best" attitude and are under the impression that it's THEIR data. No! They are a custodian and are only responsible for it WHILST IT'S IN THEIR CARE. It's not for them to say whether or not it should be passed on to others within the NHS. They can raise legitimate concerns, but not issue blanket refusals to share
[quote][p][bold]Oxonian[/bold] wrote: What the three preceding comments ignore is that the information may well be sold to commercial firms, who may be able to identify individuals from it. For example, if the information is sold to an insurance company and it can find out that you have had a particular illness, it may then refuse insurance cover to members of your family. By the way, we were told that every household would receive a leaflet explaining the new system, but I haven't had one. Have you?[/p][/quote]Two "may well's" there indicating the poster is surmising. A decision on whether not the ANONYMISED data will be made available to commercial companies has not yet been reached; it's due in April. This data has been collected by hospitals for very many years. Were we consulted then? No; because it's not personalised data Has been there been any issue with this data being 'leaked' or used for dubious purposes? No. Some GPs still have the "Doctor knows best" attitude and are under the impression that it's THEIR data. No! They are a custodian and are only responsible for it WHILST IT'S IN THEIR CARE. It's not for them to say whether or not it should be passed on to others within the NHS. They can raise legitimate concerns, but not issue blanket refusals to share Shaun the Faun
  • Score: 0

12:55pm Fri 21 Feb 14

Sandy Wimpole-Smythe says...

yabbadabbadoo256 wrote:
Oxonian wrote:
What the three preceding comments ignore is that the information may well be sold to commercial firms, who may be able to identify individuals from it.

For example, if the information is sold to an insurance company and it can find out that you have had a particular illness, it may then refuse insurance cover to members of your family.

By the way, we were told that every household would receive a leaflet explaining the new system, but I haven't had one. Have you?
I think you find that data has to be "anonymised" by law before it is sold as part of the Data Protection Act.

I agree this is more like GP Scaremongering as the data can be used to assess their care quality levels
We all know how well this Government takes care of our data and we all trust them 100%., don't we.
[quote][p][bold]yabbadabbadoo256[/bold] wrote: [quote][p][bold]Oxonian[/bold] wrote: What the three preceding comments ignore is that the information may well be sold to commercial firms, who may be able to identify individuals from it. For example, if the information is sold to an insurance company and it can find out that you have had a particular illness, it may then refuse insurance cover to members of your family. By the way, we were told that every household would receive a leaflet explaining the new system, but I haven't had one. Have you?[/p][/quote]I think you find that data has to be "anonymised" by law before it is sold as part of the Data Protection Act. I agree this is more like GP Scaremongering as the data can be used to assess their care quality levels[/p][/quote]We all know how well this Government takes care of our data and we all trust them 100%., don't we. Sandy Wimpole-Smythe
  • Score: 4

1:28pm Fri 21 Feb 14

Andrew:Oxford says...

Oxonian wrote:
What the three preceding comments ignore is that the information may well be sold to commercial firms, who may be able to identify individuals from it.

For example, if the information is sold to an insurance company and it can find out that you have had a particular illness, it may then refuse insurance cover to members of your family.

By the way, we were told that every household would receive a leaflet explaining the new system, but I haven't had one. Have you?
Depending on who your Health Centre has their contract with for their patient database and management software, you may find they already offset the cost of their licence fees through ongoing provision of anonymised data.

The NHS and Research bodies then buy the information at £40k per licence...
[quote][p][bold]Oxonian[/bold] wrote: What the three preceding comments ignore is that the information may well be sold to commercial firms, who may be able to identify individuals from it. For example, if the information is sold to an insurance company and it can find out that you have had a particular illness, it may then refuse insurance cover to members of your family. By the way, we were told that every household would receive a leaflet explaining the new system, but I haven't had one. Have you?[/p][/quote]Depending on who your Health Centre has their contract with for their patient database and management software, you may find they already offset the cost of their licence fees through ongoing provision of anonymised data. The NHS and Research bodies then buy the information at £40k per licence... Andrew:Oxford
  • Score: 0

1:40pm Fri 21 Feb 14

mytaxes says...

I am still waiting to get my letter on this subject. If they can't even get that right why should anyone trust them with the data?
I am still waiting to get my letter on this subject. If they can't even get that right why should anyone trust them with the data? mytaxes
  • Score: 4

4:33pm Fri 21 Feb 14

Andrew:Oxford says...

mytaxes wrote:
I am still waiting to get my letter on this subject. If they can't even get that right why should anyone trust them with the data?
The relevant leaflet, for me, arrived by Royal Mail as non-personalised mail.

It was tucked inside marketing material for Everest conservatories along with a little booklet promoting various car insurance companies.
[quote][p][bold]mytaxes[/bold] wrote: I am still waiting to get my letter on this subject. If they can't even get that right why should anyone trust them with the data?[/p][/quote]The relevant leaflet, for me, arrived by Royal Mail as non-personalised mail. It was tucked inside marketing material for Everest conservatories along with a little booklet promoting various car insurance companies. Andrew:Oxford
  • Score: -1

4:48pm Fri 21 Feb 14

Shaun the Faun says...

You'll know from my previous comments that I'm in favour of what's proposed and believe that there is significant misinformation and scaremongering being peddled about what's being proposed.

However, I agree that the NHS information campaign has been atrocious. Like Andrew, my 'letter' was in among pizza-parlour adverts and the like. It could have easily been over-looked. Presumably if I'd had a 'no leaflets' sticker or had formally opted-out of receiving such ephemera I wouldn't have received it at all!
You'll know from my previous comments that I'm in favour of what's proposed and believe that there is significant misinformation and scaremongering being peddled about what's being proposed. However, I agree that the NHS information campaign has been atrocious. Like Andrew, my 'letter' was in among pizza-parlour adverts and the like. It could have easily been over-looked. Presumably if I'd had a 'no leaflets' sticker or had formally opted-out of receiving such ephemera I wouldn't have received it at all! Shaun the Faun
  • Score: 1

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